“I’m so sorry this is happening to you.”
There are a few things medical professionals have said to me that have really stuck: “I’m so sorry this is happening to you”, “I don’t know how you are still working”, and “there really isn’t anything we can do”. Listen, folks, working is hard on your body. It’s hard on a healthy body, so when you are suffering with chronic and debilitating pain – it can become unbearable. But I love what I do for a living, I love working and being active, and I love helping people, so I had to find a way to make it work.
In just the first few months, my medical costs were in the thousands (with insurance), and I had experienced lost wages when I ran out of leave. It was scary! Then one evening after commuting and working 10 hours, I was told by my Project Manager that I “had until midnight” to get something done. Midnight? How on God’s green Earth was I expected to work and commute 17-18 hours? That would be hard on anyone, much less someone who was standing in front of you wearing an $800 back brace just weeks after 6 spinal injections!
I stayed way too late. I suffered horribly. Then I simply refused to do it again! There are things I know now that I wish I knew then. Maybe these things can help you – I do not want people to suffer as long as I did.